We want to understand the experience of patients who have recently attended lung cancer services at Imperial College Healthcare NHS Trust, and those supporting them. The insights we learn will help us improve our services.

Thank you for your interest in taking part.

Below is some information about the project and a short form to register your interest in taking part. 

 

What is the purpose of this project? 

The aim of this work is to understand the experience of patients and those supporting them who have recently attended lung cancer services at Imperial College Healthcare NHS Trust. The insights we learn will inform our future improvement work.

Our hospitals aspire to provide high quality cancer care for all patients.  We know we can do more to support people, and we would like to understand what we can do differently to improve experiences for our patients, and those who are supporting them.

The information you share on your experience of lung cancer services will be kept anonymous. Whilst we will be sharing a summary of what we learned in this project, nothing we share will have any identifiable information about you or the person you supported.

Who are we looking to speak with?

You are eligible to take part if:  

You have been diagnosed with, or treated for, lung cancer at Charing Cross, Hammersmith, or St Mary’s hospitals within the last 12 months. 

Or

You have supported someone important to you who fulfils the above criteria. For example, you have attended appointments with them or helped them understand information.

We are interested in speaking with people from a broad range of backgrounds, including underrepresented communities and those with neurodiversity. 

Please apply as soon as possible to be involved.

Who is leading this project?

Imperial College Healthcare NHS Trust is working with the Helix Centre, part of Imperial College London’s Institute of Global Health Innovation, to undertake this project. We are working in lung cancer care initially, as part of a wider programme of work that the Trust is doing to review and improve cancer services.

The Helix Centre has been commissioned by the Trust to carry out this project.

Imperial College Healthcare NHS Trust provides acute and specialist healthcare for over one million people every year across their hospitals in central and west London - Charing Cross, Hammersmith, Queen Charlotte’s and Chelsea, St Mary’s and Western Eye hospitals. The Helix Centre is a research lab that is part of Imperial College London and located in St Mary’s Hospital.

The Helix Centre designs and evaluates products and services that tackle major health challenges by putting people and their needs at the centre of what they do.

What happens if you are shortlisted for this project?

We would invite you to take part in an informal conversation (lasting up to 60 minutes) that can be conducted online via a video call, over the phone, or in person. We can provide an interpreter if you require and would allow up to 90 minutes for the interview in this case. If you have a preference of speaking to a man or woman, we will aim to accommodate this. If you have other accessibility needs or preferences, please let us know and we will look to accommodate these.

During the conversation we will ask you questions about your experience of lung cancer care at Imperial College Healthcare NHS Trust. We will also ask you about what good lung cancer care would look like to you, and how we could do things differently. 

After the interviews, the project team will bring together the findings from the discussions and these will be used to help form recommendations for the Trust that will inform future improvements to cancer care. A high-level summary of the results will be shared with you.

We work closely with public members with lived experience to influence our work, and often get their input on key project activities. We may involve a public member on the project team to analyse anonymised interview notes to compare with our interpretation of the findings. These interview transcripts will be anonymised, provided as physical copies, and destroyed after analysis.

With your permission, we may use anonymous quotes (so that you are not named and cannot be identified) in our report, future studies, and/or publications.

What are the benefits and possible consequences of participating in this project?

The benefit of participating in this project will be to help inform potential improvements to cancer care across Imperial College Healthcare NHS Trust, making a difference to the experience of many other patients and those important to them. 

You will also receive a £25 “One4all” voucher valid at a range of stores for taking part.

A possible consequence of participating in this project is that you may be asked to revisit some parts of your care that are upsetting for you to talk about. This may lead to you feeling uncomfortable, emotional and/or upset. To minimise this risk, we will make sure you are able to guide the conversation, and we will make sure we only discuss topics that you feel comfortable to explore. We suggest you have a break after the interview to get some fresh air, speak to a family member or friend or can have a debrief with a member of the team after. You may also choose to end the interview at any time.

Please note: This is an evaluation of current cancer services and the people conducting this evaluation are not medical professionals and are not able to answer any questions you might have. If you have any concerns about the medical care that you have experienced, you should contact the Patient advice and liaison service (PALS) and complaints team at Imperial College Healthcare Trust. If you have already made a complaint, please be aware that the team in this session will not be able to address this complaint any further and will direct you to the complaints or PALS team.

How will my privacy and confidentiality be preserved?

Under the law, Imperial College Healthcare NHS Trust is considered the data controller of any data relating to you that we process for this programme. The Trust is legally required to process your data in compliance with the requirements of the UK General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018, in addition to its own internal policies. 

We will only process your data with your consent. Your participation is entirely voluntary and you are free to withdraw your consent at any time, without giving any reason, and without any adverse consequences or penalty.

Subject to your consent, we will securely retain the data that we collect from you through the below questionnaire for a period of  7 months. After that, we will delete the data in a secure manner.

For more information about how the Trust processes your data and what rights you have, please refer to: https://www.imperial.nhs.uk/privacy. If you have questions about your data protection rights, you can contact the Trust Data Protection Officer at: imperial.dpo@nhs.net.

Express your interest and consent to take part here:

* Required information

Do you consent to:

Unfortunately we are not able to consider you for participation in this project, as we can only evaluate the Imperial College Healthcare NHS Trust lung cancer service.

Please note, that this does not include staff supporting a patient receiving care. If you work in lung cancer care and would like to find out more about the project, please contact imperial.userinsights@nhs.net.

If you are closely supporting a patient, in order to share some information about their lung cancer experience, we request that you have received their permission to do so.

Please note, that this does not include staff supporting a patient receiving care. If you work in lung cancer care and would like to find out more about the project, please see information on the intranet.

Lung cancer services are provided by Imperial College Healthcare NHS Trust at Charing Cross, Hammersmith and St Mary's hospitals.

We are asking this to ensure that we are including a wide range of people throughout the project.

We are asking this to ensure that we are including a wide range of people throughout the project.

We are asking this because we know people living in different areas have varying experiences of healthcare services. If you would not like to share this, please leave it blank.