Find out what to expect from your initial appointment with our HHT and PAVMs service.

Before your appointment

After you’ve been referred to our service, we will send you an appointment letter containing the date and time of your appointment. Along with your appointment letter, we will send you a general information sheet to explain what we will do and what you can expect when you come to our clinic.

Please bring the medicines that you take, and any letters or reports that you may have from other doctors. It is usually helpful to have someone else present as this will help you to process information, but it is not essential. See five ways to get the most out of your doctor’s appointment for more advice.

We operate one-stop clinics, which means that we aim to get all of the information required in one day to limit your trips to hospital. Please expect your appointment to take most of the day. We suggest you bring something to read.

During your appointment

We usually organise some tests for you to have when you arrive for your appointment. In lung function, we use a fingertip monitor to determine your blood oxygen levels, and perform other breathing tests. Usually you will also have an x-ray and/or scans, depending on your particular conditions and any tests you have had before.  We will avoid duplicating tests you have had performed previously unless there is a medical reason to repeat these.

Dr Claire Shovlin, our lead clinician, or her deputy, will review you personally to discuss your condition and with colleagues, process all of the information to develop a personalised management plan for you. By the end of your appointment, you will have a better understanding of how conditions affect you.

You are welcome to ask for a chaperone for your appointment. Please note that our hospitals are teaching hospitals, so medical students may be present for some appointments. If you do not wish to have them in the room please let the nurse or doctor know and the students will be asked to step outside.

After your appointment

For many people, just one visit to our clinic is enough to get the information that will enable their local doctors to help manage their condition. There are many we only see once every five to 10 years, either because they are well or because their local doctors can manage their medical issues.

Some people may require further investigations or treatments on another day – we will aim to discuss this with you before the end of your first visit to our clinical service.