HHT and PAVM patient information
Find out what to expect from your initial appointment with our HHT and PAVMs service.
Before your face-to-face appointment
We will discuss at your teleconsultation if a face to face appointment is required, and what the likely timeframe will be. We apologise that COVID has severely limited these slots, but we expect to “catch up” during 2021.
Along with your appointment letter, we will send you a general information sheet to explain what we will do and what you can expect when you come for review.
During your appointment
As a result of changes to make the appointments COVID-secure, most of our face-to-face appointments now take place on the Christopher Booth Ward Programmed Investigation Unit. You will have tests as required depending on your particular conditions and any tests you have had before- these will have been discussed with you during your previous teleconsultation. Professor Claire Shovlin, our lead clinician, will review you personally to discuss your condition and with colleagues, process all of the information to develop a personalised management plan for you.
Please note that we are a teaching hospital, so medical students may be present for some appointments. If you do not wish to have them in the room please let the nurse or doctor know and the students will be asked to step outside.
After your appointment
For many patients, just one teleconsultation or visit is enough to get the information that will enable their local doctors to help manage their condition. There are many people we only see once every five to 10 years, either because they are well or because their local doctors can manage their medical issues.
Some patients may require further investigations or treatments on another day – we will aim to discuss this with you before the end of your first visit to our clinic.
How long will it take to get an appointment?
We aim to see you within the 18 week pathway time
Should I do or bring anything to my appointment?
Please bring the medicines that you take, and any letters or reports that you have from other doctors- but only if you have these already- do not put yourself to any extra trouble.
Can I ask for a chaperone?
Who can attend my appointment with me?
It is usually helpful to have someone else present as they will help you process information, but this is not essential. See five ways to get the most out of your appointment.
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