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Photo of adolescent girls and boys looking towards a canal

More than 150,000 young people aged 11 to 25 years attend our hospitals every year in at least 100 different specialties.  


Every young person has a right to developmentally appropriate healthcare, this means care that matches their needs at the time of life they are in when they attend.  

We are dedicated to making sure that young people get their care in a way that meets their needs.

This is why we have a team called ‘The Young People Big Room’. The ‘Big Room’ meets every week and brings together a group of people including young people, doctors, nurses, therapists, managers, secretaries and many others within the hospitals as well as the North West London Sector to make care for young people at our hospitals better.

To support good transition care in all areas of the Trust, we have put together resources to help health and care teams as well as patients and their families. If you want to find out more about healthcare transition, look here: 

 

 website: 11to25hub.com

 

the OWN IT project

 

Photo of two adolescent boys sitting together
Did you know…?  

  • Adolescents and young adults have a unique identity and the brain continues to change and evolve up to 25 years of age  
  • Adolescents are not only seen in children’s services – large numbers are seen by adult teams  
  • Young people (adolescents) need to be prepared early for their move to adult services (at 16-18 years) and supported into adult healthcare systems. This process is called healthcare transition. 

Everyone working with young people can use some simple steps to prepare them for and support them into early adulthood

Healthcare Transition is a period of time when young people are preparing for transfer to adult services. It is a process whereby young people aged 11 to 25 years, especially those with long-term conditions, are given support, education and guidance during the challenges of adolescence. Parents, families, peers, teachers, trainers and healthcare teams play an important role.  

This approach is called developmentally appropriate healthcare and helps them to be empowered to manage their own healthcare needs. It is individually tailored to the needs of each young person and practiced by all members of the multidisciplinary team. 

As a patient, you should expect to be looked after in a way that suits your needs at your stage in life.  

As someone working in healthcare, you have precious opportunities to make a difference to how well young people engage with health matters and to support their journey to being independent, confident adult patients. 

Photo of group of an adolescent boy and girl next to a canal

Tailored care

Healthcare for Young People is not about ‘the condition’ but about the person and making sure that everyone gets care that works for them.  

Young people attend clinics in more than 100 different specialties. There are a few clinics that have dedicated young people teams – contact your service to find out.  

Every service or specialty where young people receive care is expected to provide developmentally appropriate care and support healthcare transition.  

It is important that any young person aged 11 to 25 years has an opportunity to discuss the wider aspects of their health and wellbeing.  

This is an opportunity to find out what risks the young person may be taking, how risk may be affecting their medical condition, as well as an opportunity to educate the young person about wider aspects of their health and wellbeing. 

Clinics 

Young people attend clinics in more than 100 different specialties. There are a few clinics that have dedicated young people teams – contact your service to find out.  

Many others manage healthcare transition in the normal clinics, either in children’s services or adult services.  

Meet the team 

We are dedicated to making sure that young people get their care in a way that meets their needs.  

This is why we have a team called ‘The Young People Big Room’. The ‘Big Room’ meets every week and brings together a group of people including young people, doctors, nurses, therapists, managers, secretaries and many others within the hospitals as well as the North West London Sector to make care for young people at our hospitals better.  

The coaches for the YP Big room are currently Dr Katie Malbon and Dr Claudia Gore and our regular core team includes clinical nurse specialists from different specialties, the CC4C team, adult and paediatric clinical teams, learning disability nurse specialists, the Safeguarding nurses, researchers and many others.  

The learning disability + autism team (LD+A) operates across sites supporting patients (young people and adults). They have many helpful resources and your clinical team can contact them to support you.  

GP referrals

Contact the Learning Disability & Autism Team (LD+A team by bleep (1172), phone  (020 3312 2272)  or email (imperial.disability@nhs.net).

Be sure to speak to the clinic you attend to get the right help as a young person, or as a carer of a young person.   

Self-referrals 

At this point, there are no adolescent and young adult clinics which take direct referrals. 

Contact the service you need and ask about their adolescent and young adult clinics. 

If you have a learning disability or look after a young person with a learning disability or autism, ask the team about a referral to the learning disability specialist nurses for support. 

Contact 

Contact the specialty you need directly using the details from the service directory. 

    Patient information

    Healthcare transition support

    General information for young people and their families about healthcare:

    • Find all key facts on healthcare transition on our charity funded website: www.11to25Hub.com.
      The site has information covering key areas about topics which young people find important, as well as offering a useful ‘Toolbox’ with very practical information.  
    • Own it, supporting young people to take ownership of their healthcare.
    • Who decides? These resources explain when/what young people have a right to decide themselves and there are downloadable sheets for young people, parents and clinical teams.   
    • Ready, Steady, Go & Hello: Transition Readiness Questionnaires for young people and parents/carers. These questionnaires help you to think about aspects of your life and what you need to consider when living with health needs.
    • ‘Ask 3 Questions’ – this part of Ready, Steady, Go focusses on the three key questions young people should be empowered to ask.
    • Best For You - this NHS website aims to make it easier for you to find the support you need. It includes information about mental health, digital tools for anyone in the UK and personalized mental health services for young people in North West London. 
    • The Luna App for young people, can help young people access reliable information about healthcare and wellbeing.

    Condition specific advice and resources

    Many charities offer support for adolescents and young adults, their families and healthcare teams on their websites:  

    https://www.diabetes.org.uk/guide-to-diabetes/young-adults  

    https://www.mencap.org.uk/advice-and-support/children-and-young-people/transition-adult-services  

    https://www.diabetes.org.uk/search?q=transition&op=Search+Diabetes+UK#gsc.tab=0&gsc.q=transition&gsc.page=1  

    Resources for supporting complex health needs

    For information and sources of support for young people approaching adulthood with complex health needs:

    Improvement and research

    Examples of the research to understand and improve care for young people

    • There are research studies which recruit young people up to age 23 years, such as for example the Natasha study.
    • Imperial College encourages young people to get involved in the Young People Advisory Network.
    • The Inbetweeners NCEPOD Report - A review of the barriers and facilitators in the process of the transition of children and young people with complex chronic health conditions into adult health services.
    • Adolescent Communication Simulation Training for healthcare teams.
    • Mohn Centre Community Film Project Imperial College London research group.

    Mental health research

    • There are short, powerful digital stories from young people and their parents in the Terrific Teens Project.