If genetic testing is discussed with you by your clinician as part of your care you will also be asked if you would like to participate in the National Genomic Research Library by donating your health data to research. If you agree to take part your data will be in a secure national database of de-identified genome and health data managed by Genomic England. Access to this data will only be given to approved researchers, so that can use this information to study diseases and develop new treatments.

You can access patient information leaflets in the links below:

 Patient information on genomic research

 Whole Genome Sequencing for a rare disease 

Whole Genome Sequencing for cancer  

Other websites for information and support

Genetic Alliance logo
Genomics England logo
Macmillan logo
Swan logo
Unique logo